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Introduction
Origin
Purpose
Organization
Service items
Genetic Disease Consultation Clinic
Development status
Future development
Newborn screening
Diagnosis statistics over the years
Rare Disease Care
Introduction to Rare Disease Care
Disease impact
Psychological support
Pregnancy care
Nursing consultation
Activities
Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
實驗室簡介
Download
Search
Search
Introduction
展開選單
收合選單
Origin
Purpose
Organization
Service items
Genetic Disease Consultation Clinic
Development status
Future development
Newborn screening
展開選單
收合選單
Diagnosis statistics over the years
Rare Disease Care
展開選單
收合選單
Introduction to Rare Disease Care
Disease impact
Psychological support
Pregnancy care
Nursing consultation
Activities
Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
展開選單
收合選單
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
展開選單
收合選單
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
展開選單
收合選單
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
展開選單
收合選單
實驗室簡介
Download
展開選單
收合選單
Home
Sitemap
中文
BranchesHospital
SuaoHospital
YuanshanHospital
TaoyuanHospital
HsinchuHospital
YuLiHospital
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TaitungHospital
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衛教資源
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衛教資源
0~6歲嬰幼兒發展里程表
兒童發展遲緩及治療
早產兒的發展需求與出院後追蹤
物理治療相關衛教
展開/收合選單
「參與」提高樂趣,「生活」就是訓練
以作息本位的目標達成量表的介紹
慢飛天使之健康促進:認識健康體適能
慢飛天使居家運動訓練活動設計系列(一)
慢飛天使居家運動訓練活動設計系列(二)
慢飛天使居家運動訓練活動設計系列(三)
慢飛天使居家運動訓練活動設計系列(四)
慢飛天使居家運動訓練活動設計系列(五)
慢飛天使居家運動訓練活動設計系列(六)
慢飛天使居家運動訓練活動設計系列(七)
慢飛天使居家運動訓練活動設計系列(八)
慢飛天使居家運動訓練活動設計系列(九)
慢飛天使居家運動訓練活動設計系列(十)
物理治療對長期臥床病童的幫助
脊柱側彎相關
職能治療相關衛教
展開/收合選單
何謂發展協調障礙
淺談書寫衛教單
書寫能力介紹part1~part3
書寫能力介紹part4~part7
如何提升0~1歲寶寶的注意力?
注意力不良兒童教導上之注意事項
學習障礙介紹
您的孩子有感覺統合的問題嗎?
感覺統合知多少
感覺統合活動介紹
感統篩檢表
什麼是視知覺能力?
兒童視知覺功能篩檢量表
視知覺
我的孩子注意力不集中
書寫相關技巧--動作篇
語言治療相關衛教
展開/收合選單
零至六個月幼兒語言發展
七至十二個月兒童語言發展
一至二歲兒童語言發展
二至三歲兒童語言發展
三至四歲兒童語言發展
四至五歲兒童語言發展
構音/音韻異常
如何和寶貝孩子一起享受共讀的時光
當孩子不說話的時候可以怎麼做
語言發展障礙
小孩口水流不停怎麼辦?
口吃
唇腭裂
聽能復健
我的孩子有語言問題嗎?
如何幫助構音/音韻異常兒童
社會心理相關衛教
展開/收合選單
親職諮詢:以大腦科學為基礎的教養原則講義
零至二歲嬰幼兒的認知發展與親職技巧
0-3月大發展水準嬰兒居家手冊
3-6月大發展水準嬰兒居家手冊
6-9月大發展水準嬰兒居家手冊
9-12月大發展水準嬰兒居家手冊
2-3歲在家中可使用的教育項目
3-4歲在家中可使用的教育項目
4-5歲在家中可使用的教育項目
如何有效溝通
學前兒童親職基本教養守則摘錄
認知訓練
擴展學前幼兒認知技巧
改善行為的六大步驟
特殊兒童的行為改變方法守則
幼童情緒行為處理原則
讓電視/3C成為孩子發展與學習的助力
4-6歲心理社會復健家長親職諮詢衛教
認識自閉症
威廉氏症候群
家庭與社會資源相關衛教
展開/收合選單
早期療育資源介紹
早期療育家庭服務
爸媽準備好了嗎?
如何讓孩子聽話~談父母效能
早期療育家長團體
腦性麻痺相關衛教
展開/收合選單
腦性麻痺的整體治療
腦性麻痺-語言治療
腦性麻痺兒常見的骨科健康問題
腦性麻痺患者肌肉痙攣的處理
肉毒桿菌毒素處理痙攣型腦性麻痺的成效
神經性疾病肌肉痙攣的新療法---椎管內baclofen注射
癲癇兒的復健需求
脊柱裂相關
展開/收合選單
脊柱裂患者的復健治療
脊柱裂患者常見外科手術
脊柱裂患者大小便異常的臨床處理
先天脊髓膨出症患者的復健治療
兒童患者大小便異常的臨床處理
神經肌肉病變的整體復健治療
音樂治療與早期療育
兒童牙科
衛教資源
0~6歲嬰幼兒發展里程表
兒童發展遲緩及治療
早產兒的發展需求與出院後追蹤
物理治療相關衛教
「參與」提高樂趣,「生活」就是訓練
以作息本位的目標達成量表的介紹
慢飛天使之健康促進:認識健康體適能
慢飛天使居家運動訓練活動設計系列(一)
慢飛天使居家運動訓練活動設計系列(二)
慢飛天使居家運動訓練活動設計系列(三)
慢飛天使居家運動訓練活動設計系列(四)
慢飛天使居家運動訓練活動設計系列(五)
慢飛天使居家運動訓練活動設計系列(六)
慢飛天使居家運動訓練活動設計系列(七)
慢飛天使居家運動訓練活動設計系列(八)
慢飛天使居家運動訓練活動設計系列(九)
慢飛天使居家運動訓練活動設計系列(十)
物理治療對長期臥床病童的幫助
脊柱側彎相關
職能治療相關衛教
何謂發展協調障礙
淺談書寫衛教單
書寫能力介紹part1~part3
書寫能力介紹part4~part7
如何提升0~1歲寶寶的注意力?
注意力不良兒童教導上之注意事項
學習障礙介紹
您的孩子有感覺統合的問題嗎?
感覺統合知多少
感覺統合活動介紹
感統篩檢表
什麼是視知覺能力?
兒童視知覺功能篩檢量表
視知覺
我的孩子注意力不集中
書寫相關技巧--動作篇
語言治療相關衛教
零至六個月幼兒語言發展
七至十二個月兒童語言發展
一至二歲兒童語言發展
二至三歲兒童語言發展
三至四歲兒童語言發展
四至五歲兒童語言發展
構音/音韻異常
如何和寶貝孩子一起享受共讀的時光
當孩子不說話的時候可以怎麼做
語言發展障礙
小孩口水流不停怎麼辦?
口吃
唇腭裂
聽能復健
我的孩子有語言問題嗎?
如何幫助構音/音韻異常兒童
社會心理相關衛教
親職諮詢:以大腦科學為基礎的教養原則講義
零至二歲嬰幼兒的認知發展與親職技巧
0-3月大發展水準嬰兒居家手冊
3-6月大發展水準嬰兒居家手冊
6-9月大發展水準嬰兒居家手冊
9-12月大發展水準嬰兒居家手冊
2-3歲在家中可使用的教育項目
3-4歲在家中可使用的教育項目
4-5歲在家中可使用的教育項目
如何有效溝通
學前兒童親職基本教養守則摘錄
認知訓練
擴展學前幼兒認知技巧
改善行為的六大步驟
特殊兒童的行為改變方法守則
幼童情緒行為處理原則
讓電視/3C成為孩子發展與學習的助力
4-6歲心理社會復健家長親職諮詢衛教
認識自閉症
威廉氏症候群
家庭與社會資源相關衛教
早期療育資源介紹
早期療育家庭服務
爸媽準備好了嗎?
如何讓孩子聽話~談父母效能
早期療育家長團體
腦性麻痺相關衛教
腦性麻痺的整體治療
腦性麻痺-語言治療
腦性麻痺兒常見的骨科健康問題
腦性麻痺患者肌肉痙攣的處理
肉毒桿菌毒素處理痙攣型腦性麻痺的成效
神經性疾病肌肉痙攣的新療法---椎管內baclofen注射
癲癇兒的復健需求
脊柱裂相關
脊柱裂患者的復健治療
脊柱裂患者常見外科手術
脊柱裂患者大小便異常的臨床處理
先天脊髓膨出症患者的復健治療
兒童患者大小便異常的臨床處理
神經肌肉病變的整體復健治療
音樂治療與早期療育
兒童牙科
:::
衛教資源
0~6歲嬰幼兒發展里程表
兒童發展遲緩及治療
早產兒的發展需求與出院後追蹤
物理治療相關衛教
職能治療相關衛教
語言治療相關衛教
社會心理相關衛教
家庭與社會資源相關衛教
腦性麻痺相關衛教
脊柱裂相關
先天脊髓膨出症患者的復健治療
兒童患者大小便異常的臨床處理
神經肌肉病變的整體復健治療
音樂治療與早期療育
兒童牙科
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