Time
|
Topic
|
Speaker Moderator
|
15.30 - 16.00
|
Welcome Reception and Ceremony
|
Shire Taiwan/HK GM Emily Li
|
16.00 - 16.10
|
Welcome and Introduction
|
Prof. Lin, Shuan Pei
|
16.10 - 17.00
|
The Landscape of Enzyme Replacement Therapy in Gaucher Disease
|
Prof. Ari Zimran Prof. Lin, Shuan Pei
|
17.00 - 17.20
|
Normalization Concept:
Lesson Learned From Disease Registries
|
Deborah Elstein Prof. Lin ,Hsiang-Yu
|
17.20 - 17.30
|
Break
|
|
17.30 - 17.50
|
Gaucher Disease in Taiwan:
Experience in One Institute
|
Asst. Prof. Yang, Chia Feng Prof. Niu, Dau Ming
|
17.50 - 18.05
|
What’s the Meaning of ERT to the patients
|
Patient Story Prof. Chiu, Tsung Chieh
|
18.05 - 18.25
|
The More Thing We Can Do, for Supporting Patients
|
Chiu, Yao-Chang
|
18.25 - 18.45
|
Q & A
|
Prof. Lin, Shuan Pei
|
18.45 - 18.55
|
Closing Remark
|
Prof. Lin, Shuan Pei
|