Beyond Change, Ignite True Potential! VPRIV Launch Symposium

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Beyond Change, Ignite True Potential!

VPRIV Launch Symposium

15.30-21.00, 18th Aug 2018

Time

Topic

Speaker                            Moderator

15.30 - 16.00

 

Welcome Reception and Ceremony

 

Shire Taiwan/HK GM Emily Li

16.00 - 16.10

Welcome and Introduction

Prof. Lin, Shuan Pei

16.10 - 17.00

The Landscape of Enzyme Replacement Therapy in Gaucher Disease

Prof. Ari Zimran                            Prof. Lin, Shuan Pei

17.00 - 17.20

Normalization Concept:

Lesson Learned From Disease Registries

Deborah Elstein                            Prof. Lin ,Hsiang-Yu

17.20 - 17.30

Break

 

17.30 - 17.50

Gaucher Disease in Taiwan:

Experience in One Institute

Asst. Prof. Yang, Chia Feng        Prof. Niu, Dau Ming            

17.50 - 18.05

What’s the Meaning of ERT to the patients

Patient Story             Prof. Chiu, Tsung Chieh  

18.05 - 18.25

The More Thing We Can Do, for Supporting Patients

Chiu, Yao-Chang            

18.25 - 18.45

Q & A

Prof. Lin, Shuan Pei

18.45 - 18.55

Closing Remark

Prof. Lin, Shuan Pei

 

關鍵字:牛道明醫師、牛杯杯、牛伯伯、罕見疾病、罕見病、罕病、代謝疾病、遺傳諮詢、苯酮尿症、DmNiu、Dau-Min Niu、陽明大學臨床醫學研究所、台北榮總